It's been a while since I updated on my situation and upcoming Neurosurgeries in Barcelona. A lot has been going on in the background since. This is a very stressful time, emotionally and physically not just for me but for my family also. I am facing in to a surgery that right now is to … Continue reading An Update , News and Thank Yous
London updates from gofundme page -1
I will be posting screenshots of updates I had written for my gofundme campaign. I had to start a new page which has none of my updates from before on it. The best I could do is screenshot as much as I could and put it together like this for anyone who wants to read … Continue reading London updates from gofundme page -1
My EDS Journey- The Puzzle starts coming together with some PoTs – Pt3
During your twenties your life goes through massive changes, regardless of having a chronic illness or not. People go travelling, finish college, move away. I was kind of stuck in a loop. I had a constant personal limit that was set by a diagnosis. I could only go so far without crashing. I couldn't be … Continue reading My EDS Journey- The Puzzle starts coming together with some PoTs – Pt3
My EDS Journey- The very first answer. Pt 2
Would I ever know the day when this illness would raise its head so high that it would push me down so hard that my body would give in and I would just crumble? Did I even think it would ever happen? I dont think I was ever prepared for what lay ahead. I was … Continue reading My EDS Journey- The very first answer. Pt 2
Looking fresh faced Feeling like a disgrace.
Every Sunday I like to take some time to look after my skin.Its one of the largest organs of our body and has a many important functions. Everyday its exposed to extremes of temperatures, pollution, oxidative stress. This along with a chronic illness, malnutrition, dehydration and taking medication means you have to be even more … Continue reading Looking fresh faced Feeling like a disgrace.
My EDS journey -The start of the road pt1
Ive decided for May I will post different chapters of my whole EDS journey. It needs to be broken into segments as its a long ol tale. May is Ehlers Danlos Syndrome Awareness month or The Ehlers Danlos Syndromes as they are now known since March 15th 2017. I dont know why that makes me … Continue reading My EDS journey -The start of the road pt1
When are you off?
Since Christmas I'm faced with this question "when are you off?". Its usually asked with excitment when you've a holiday or a weekend away booked. When you are in my situation though it means when are you off to London for medical care again? … Continue reading When are you off?
Eds The not so Beautiful Life-London Update
Two weeks ago I finally got to see the Cardiologist. Its about time its not like my heart hasn't been on a nonstop rave waiting for this 'urgent' appointment referal that went in on August 4th. I've been having none stop issues with tachycardia again since about May again.Tachycardia is a racing heart beat over … Continue reading Eds The not so Beautiful Life-London Update
My mother is Midwest Carer of the Year 2016
Yesterday my mother recieved the Midwest Carer of the Year Award. It was overwhelming and we are all very proud. I got to read the nomination I wrote for my mams entry. I couldn't remember what I wrote as it was all the stuff that she does everyday and I just typed as if I … Continue reading My mother is Midwest Carer of the Year 2016